Effective December 16, 2013
Our Site may contain links to third-party websites/ content/ services that are not owned or controlled by us. We are not responsible for how these properties operate or treat your personal information so we recommend that you read the privacy policies and terms associated with these third party properties carefully.
- Information We Collect and Use
- How We Use Personal Information
- How We Share Your Personal Information
- Cookies and Other Tools
- Security Policies
- Your Privacy Choices and Updates
- Transfer of Data to Other Countries
- Children’s Privacy
- Contact Us
Information We Collect and Use
We collect personal information you choose to provide, e.g., through contact pages, and location finders and in connection with your inquiries. For example, you may choose to provide your name, contact information, or health, in connection with to this clinical trial. Healthcare providers may choose to provide information relating to their specialties and professional affiliations.
In addition, we may gather information about you automatically through your use of the Site, e.g., your IP address and how you navigate our Site. See also, the Section below on Cookies and Other Tools.
From time to time, we may use or augment the personal information we have about you to better understand your interests by associating demographic information with the information you have provided.
How We Use Personal Information
We may use your personal information in the following ways:
To Serve You: We may use your personal information to respond to your inquiries and provide the services you request through our contact form. On our location page, if you enter your zip code we provide you with a list of locations that you may contact for more information. See also our Cookies and Other Tools Section below. We will also use your information to provide customer service and support to the trial locations.
To Validate Your Ability to Access / Use Certain Products, Services and Information: Some products, services and information we offer may only be suitable for/ accessible to individuals meeting certain eligibility or other criteria. In such cases, we may verify the location information you have provided.
In Accordance with Special Program Terms: On occasion, we may offer special programs, activities, clinical trials, events or promotions via the Site (“Special Programs”) that have specific terms, privacy notices and/or informed consent forms that explain how any personal information you provide will be processed in connection with the Special Program (“Special Program Terms”). We will honor those Special Program Terms with respect to your personal information. Some of these Special Programs may involve sharing information with a third party and we will provide you with notice of this. You may be offered the opportunity to agree to or opt-out of the sharing of your information with such third party. But, in some instances, it may be necessary to agree to share with a third party in order to participate in a particular Special Program. If you consent/do not opt-out, we will share your information with the third party; and the personal information you provide may be used by the third party in accordance with the Special Program Terms and, unless provided otherwise in such Special Program Terms, for their own purposes in accordance with their own policies/terms. We strongly suggest you review the Special Program Terms and any applicable third party policies/ terms before participating.
How We Share Your Personal Information
We may share your personal information as follows:
With Service Providers and Business Partners: We may retain other companies and individuals to perform services on our behalf and we may collaborate with other companies and individuals with respect to particular products or services (collectively, “Providers”). Examples of Providers include data analysis firms, customer service and support providers, email and SMS vendors, web hosting and development companies and fulfillment companies. Providers also include our co-promote partners for products that we jointly develop and/or market with other companies. Some Providers may collect information on our behalf on our Site. These third parties may be provided with access to personal information needed to perform their functions, but they may not use such information other than on our behalf and subject to contracts that protect the confidentiality of the information. In addition, as noted above, we may share information with third parties in accordance with Special Program Terms unless you opt-out/do not consent.
To Comply with Law/Protect: We reserve the right to disclose your personal information as required by law, when we believe disclosure is necessary to comply with a regulatory requirement, judicial proceeding, court order, or legal process served on us, or to protect the safety, rights, or property of our customers, the public or our business.
In the Aggregate/De-Identified: We may also disclose aggregate or de-identified data that is not personally identifiable with third parties. Aggregate data is created by pooling information about individuals and describing the data in the aggregate, e.g., 20% of customers who clicked on the X promotion participated in the promotion.
Cookies and Other Tools
Our business partners and we collect information about you by using cookies, tracking pixels and other technologies (collectively, “Tools”). We use this information to better understand, customize and improve user experience with our websites, services and offerings as well as to manage our advertising. For example, we use web analytics services that leverage these Tools to help us to understand how visitors engage with and navigate our Site, e.g., how and when pages in a site are visited and by how many visitors. We are also able to offer our visitors a more customized, relevant experience on our sites using these Tools by delivering content and functionality based on your preferences and interests. If you have provided us with personal information, e.g., through a registration or a request for certain materials, we may associate this personal information with information gathered through the Tools. This allows us to offer increased personalization and functionality.
Your web browser can be set to allow you to control whether you will accept cookies, reject cookies, or to notify you each time a cookie is sent to your browser. If your browser is set to reject cookies, websites that are cookie-enabled will not recognize you when you return to the website, and some website functionality may be lost. The Help section of your browser may tell you how to prevent your browser from accepting cookies. To find out more about cookies, visit www.aboutcookies.org.
We use technical, administrative and procedural measures in an attempt to safeguard your personal and other information from unauthorized access or use. No such measure is ever 100% effective though, so we do not guarantee that your personal and other information will be secure from theft, loss, or unauthorized access or use, and we make no representation as to the reasonableness, efficacy, or appropriateness of the measures we use to safeguard such information. If you have reason to believe that your interaction with us is no longer secure (for example, if you feel that the security of any account you might have with us has been compromised), please immediately notify us by contacting us at email@example.com.
Your Privacy Choices and Updates
You may always update your personal information and your preferences. Limited communications may be necessary in order for you to participate in a particular program or service. Different programs and services may offer different phone numbers, links or preference managers that allow you to inform us of your updates and choices, including opting out of particular communications. These contact options are typically available on our Sites but you may always contact our Privacy Officer for assistance at firstname.lastname@example.org to update your information or preferences.
Transfer of Data to Other Countries
We are committed to protecting the privacy of children. We do not knowingly collect personal information from children under the age of 13.
Please contact us if you have any questions or concerns about your personal information or require assistance in managing your choices.
DMD Myostatin Clinical Trial